Resources for Starting
a Support Group
FSR is committed to providing people
affected by sarcoidosis with the support
they need to successfully cope with this
disease and committed to stimulating the
launch of new groups across the country.
In addition
to providing free educational materials to
dozens of sarcoidosis support groups with
hundreds of members, the Foundation has
recruited volunteer leaders from more than
10 groups throughout the country to serve on
a Support Group Advisory Council. Together
with these patient advocates, FSR is laying
the groundwork for a nationwide support
group referral network and outlining tools
to assist new groups through the development
of a Support Group Leader's Manual. We are
confident that we are actively increasing
local access to information through these
new and needed patient resources.
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Support Group Advisory Council
If
you are interested in looking for guidance
with starting a group, we can put you in
contact with one of the knowledgeable
leaders who serves on our Support Group
Advisory Council.
Our
upcoming
Patient Conference will also feature
a presentation by Council Members entitled
Providing Successful Support to Patients &
Peers.
Emma
Carroll
Janine’s Sarcoidosis Outreach Foundation
&
Support Group
Patricia Coleman
West TN Sarcoidosis Support Group
Sandra Conroy
National Sarcoidosis Resource Center
Robbie Darden
Central Indiana Sarcoidosis Support Group
Brenda Harris
Let's Breathe Sarcoidosis Support Group
Shirley Holley
Denver Sarcoidosis Awareness Support
Group
Ruth Jacobs & Yvette Richmond
REACH—Sarcoidosis Network Foundation
Gwen Mitchell
Chicago Southside Sarcoidosis Support
Becky Robertson
Middle TN Sarcoidosis Support Group
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FSR Support Group Manual
The Advisory Council has made exciting
progress in the development of a tool-kit to
help new leaders provide better access to
local information and emotional support.
Work on the manual is ongoing, however, as
chapters are finished, they are made
available to the public through this Web
site.
Sadly in 2008, we lost a founding Council
Member, Doris
Peterson to sarcoidosis. The manual is
dedicated to her memory.
Starting a Sarcoidosis Support Group
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