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Online
Support from FSR:
FSR
has an online
Sarcoidosis Community which has
offered thousands of patients, their
families and caregivers a safe, trusted
online environment to share personal experiences.
As a member, you can actively participate in
discussion groups and build a network of
online friends. You can also create a
personal blogs (online diaries) to share your
story with others on a daily basis.
You can
connect with other patients in your area of
the country by using the Advanced Search and
choosing your state, city or Zip code.
Learn More.
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Other Online
Support Groups:
The
Foundation for Sarcoidosis Research
makes no representations or guarantees about
the support groups listed in this directory,
nor does inclusion in this list imply an
endorsement by FSR of the group or an
assessment of the quality of services
offered.
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Sarcoidosis Circle of Friends Health Chat at AOL
Meets
Thursdays from
10:00 PM to 11:00 PM (EST) and Sundays from 6:00 PM
to 7:00 PM (EST). You must be an AOL member to
participate.
Ninee Sarcoidosis Awareness Online Group
This is a
support group site with emphasis on health
complications of sarcoidosis. For more
information visit:
http://health.groups.yahoo.com/group/sarcoidosisawareness/.
Neurosarcoidosis
Yahoo Group
This bulletin board provides information and
support for those dealing with NS and systemic
sarcoidosis.
For more information visit:
http://health.groups.yahoo.com/group/Neurosarcoidosis/.
Sarcoid Buddies
This online
group offers support and the chance to share
experiences. The site recently moved from MSN
to its new location at:
http://sarcoidbuddies.blastgroups.com/.